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 Posted: Sat Oct 20, 2018 2:49 pm
You know you're really damn tired when you're even exhausted in your dreams, ugh...
I hate being ill.
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Posted: Sat Oct 20, 2018 11:11 pm
Queen Spazzy
You know you're really damn tired when you're even exhausted in your dreams, ugh...
I hate being ill.
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Posted: Sat Oct 20, 2018 11:12 pm
I hope you feel better soon! heart
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Posted: Mon Oct 22, 2018 11:30 am
Ahaha, yes, this is pretty much me right now.
I've been off and on ill for, like, weeks now, and I tried to be normal when I went to visit family recently, but it totally didn't work. >>;
I don't even need a Halloween costume at this point, I pretty much look like walking death already. >>;
I spent literally all day in bed yesterday and have no regrets.
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Posted: Mon Oct 22, 2018 8:38 pm
Queen Spazzy Ahaha, yes, this is pretty much me right now.
I've been off and on ill for, like, weeks now, and I tried to be normal when I went to visit family recently, but it totally didn't work. >>;
I don't even need a Halloween costume at this point, I pretty much look like walking death already. >>;
I spent literally all day in bed yesterday and have no regrets. That's okay. I sleep in my bed a lot of the day too lately. Of course, this is not due to being sick. My sleep schedule is just inverted because of all the weeks I had spent studying. I got used to staying up late. Do you still go trick or treating? No judgment if you do. Personally, I eat the candy that's leftover from what the trick or treaters don't get. I wonder if you have a horrible flu.
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Posted: Tue Oct 23, 2018 1:15 pm
Blind Blindness That's okay. I sleep in my bed a lot of the day too lately. Of course, this is not due to being sick. My sleep schedule is just inverted because of all the weeks I had spent studying. I got used to staying up late. Do you still go trick or treating? No judgment if you do. Personally, I eat the candy that's leftover from what the trick or treaters don't get. I wonder if you have a horrible flu. I just spend most of my time sleeping these days, I'm always exhausted. =w=;
I took something out to the dumpster last night and thought I was gonna keel over before I got back to my apartment.
(Which goes to show once I'm feeling properly better I'm actually going to have to work on having normal person stamina again, ugh.)
Even if I still did go trick-or-treating, I wouldn't do it here in the city, I don't think, I'm too paranoid...
(Though I do have a godchild I could go with and use to schmooze candy now, haha~)
I can't even really eat any of the candies, anyway, though, so there'd literally be no point in it for me.
I honestly don't know what's wrong, just that it won't go away and it absolutely sucks, I've lost a lot of weight because of this... It's draining in, like, every sense of the word. We kind of suspect the problem is not so much that it's one thing but that I'm just unlucky and keep catching every little thing around because I don't have the energy left to fight anything off now. Just a theory, though, who really knows at this point. =w=;
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Posted: Wed Oct 24, 2018 2:14 am
Queen Spazzy Blind Blindness That's okay. I sleep in my bed a lot of the day too lately. Of course, this is not due to being sick. My sleep schedule is just inverted because of all the weeks I had spent studying. I got used to staying up late. Do you still go trick or treating? No judgment if you do. Personally, I eat the candy that's leftover from what the trick or treaters don't get. I wonder if you have a horrible flu. I just spend most of my time sleeping these days, I'm always exhausted. =w=;
I took something out to the dumpster last night and thought I was gonna keel over before I got back to my apartment.
(Which goes to show once I'm feeling properly better I'm actually going to have to work on having normal person stamina again, ugh.)
Even if I still did go trick-or-treating, I wouldn't do it here in the city, I don't think, I'm too paranoid...
(Though I do have a godchild I could go with and use to schmooze candy now, haha~)
I can't even really eat any of the candies, anyway, though, so there'd literally be no point in it for me.
I honestly don't know what's wrong, just that it won't go away and it absolutely sucks, I've lost a lot of weight because of this... It's draining in, like, every sense of the word. We kind of suspect the problem is not so much that it's one thing but that I'm just unlucky and keep catching every little thing around because I don't have the energy left to fight anything off now. Just a theory, though, who really knows at this point. =w=; I just don't get enough benefit or amusement from it anymore. Been there, done that. Though I would entertain the possibility of going to a party with my friend should one of them ask, but I doubt they will, and I'm perfectly content staying home. That sounds horrific. It really does. If you get worse, I know money is a horrible thing, but...I don't want you to die dear, lol. Maybe a doctor at that point.
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Posted: Wed Nov 07, 2018 11:24 am
Trying to ******** figure out how I'm supposed to focus on getting better when the system seems to be working against me in like a thousand ways.
My beau tried calling the hospital to see about scheduling my follow-ups yesterday and nobody was around to actually answer the calls.
They called back today, and I had to answer the phone and try to string together coherent sentences to express what I needed.
(The guy probably thought I was absolutely stupid, but I could legitimately barely breathe because of my anxiety.)
On top of that, apparently they legitimately don't really want to see you unless you have insurance because I had to tell him I'm not covered and he's like "Well, you have to pay right now if we're going to schedule you."
And, like, no one ever mentioned I'd need over eighty freaking dollars just to schedule an appointment?
Like, it would have taken them thirty seconds to be like "Oh, and they'll want you to pay in advance since you don't have insurance," but no one said anything about it?
And like, I dunno, maybe he didn't fully understand what I wanted (to schedule to enroll in the study), but it should have been in my records?
In the end I had to literally tell him I CAN'T afford to pay that right now and the whole thing was just an exercise in fruitlessness...
I was so frustrated and overwhelmed afterward that I spent, like, five ******** minutes just crying and feeling worthless, which is absolutely not doing me any favors in trying to get well...
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Posted: Wed Nov 07, 2018 12:38 pm
Queen Spazzy
Trying to ******** figure out how I'm supposed to focus on getting better when the system seems to be working against me in like a thousand ways.
My beau tried calling the hospital to see about scheduling my follow-ups yesterday and nobody was around to actually answer the calls.
They called back today, and I had to answer the phone and try to string together coherent sentences to express what I needed.
(The guy probably thought I was absolutely stupid, but I could legitimately barely breathe because of my anxiety.)
On top of that, apparently they legitimately don't really want to see you unless you have insurance because I had to tell him I'm not covered and he's like "Well, you have to pay right now if we're going to schedule you."
And, like, no one ever mentioned I'd need over eighty freaking dollars just to schedule an appointment?
Like, it would have taken them thirty seconds to be like "Oh, and they'll want you to pay in advance since you don't have insurance," but no one said anything about it?
And like, I dunno, maybe he didn't fully understand what I wanted (to schedule to enroll in the study), but it should have been in my records?
In the end I had to literally tell him I CAN'T afford to pay that right now and the whole thing was just an exercise in fruitlessness...
I was so frustrated and overwhelmed afterward that I spent, like, five ******** minutes just crying and feeling worthless, which is absolutely not doing me any favors in trying to get well... I'm so so sorry to hear that. First, I will say that you were very brave! So...I am going to tell you something. My dad has been sick for many years. As you know, he's had a foot amputation that has debilitated him for months. This is how hospitals are. They are disorganized, incompetent, often devoid of interdisciplinary care, and mixed messages galore. They often don't return calls, for a myriad of reasons. It is a patience game when dealing with hospitals. Yes, there are often office payments. So I do want to let you know what you're up against, because unfortunately, this will be a new reality. Is it always this bad? No, not necessarily. Not once you get the ball rolling. However, unfortunately, you're talking to a person who knows next to nothing about you, has little personal investment in you, and you're right, probably has not read your records (if that person is even allowed to). Indeed, it's possible that it's not in your records. People are not always detailed and do not always communicate needed information in health care settings. As much as it hurts, I would muster up whatever money to pay for the follow-up appointment. I know $80 sucks. (I don't know how much beyond the $80 it would cost). HOWEVER, it gives you an opportunity to speak with an actual person there, not just about your condition, but about the study itself. And when some person initially was talking with you about the study, they should have given you an informed consent form, no? You have a right to have a copy of that form. On that form, it should list the contact information for the person in charge of the study. It should include the doctor who spoke with you about the study, if not on the form then I think he should have provided you with his or her information. Do you have it? Anyway, so that would be what I would do. The system does suck, but it gets a bit better once people know you and you better know how to navigate the system. It will always be a bit tough, though, unfortunately, and I'm very sorry that you had to go through that experience. You're dealing with so much at one time and it's hard to take it all in and know what to do when you're in a financially precarious situation. *gives you hugs* You were brave, and are brave.
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Posted: Thu Nov 08, 2018 6:05 am
Blind Blindness I'm so so sorry to hear that. First, I will say that you were very brave! So...I am going to tell you something. My dad has been sick for many years. As you know, he's had a foot amputation that has debilitated him for months. This is how hospitals are. They are disorganized, incompetent, often devoid of interdisciplinary care, and mixed messages galore. They often don't return calls, for a myriad of reasons. It is a patience game when dealing with hospitals. Yes, there are often office payments. So I do want to let you know what you're up against, because unfortunately, this will be a new reality. Is it always this bad? No, not necessarily. Not once you get the ball rolling. However, unfortunately, you're talking to a person who knows next to nothing about you, has little personal investment in you, and you're right, probably has not read your records (if that person is even allowed to). Indeed, it's possible that it's not in your records. People are not always detailed and do not always communicate needed information in health care settings. As much as it hurts, I would muster up whatever money to pay for the follow-up appointment. I know $80 sucks. (I don't know how much beyond the $80 it would cost). HOWEVER, it gives you an opportunity to speak with an actual person there, not just about your condition, but about the study itself. And when some person initially was talking with you about the study, they should have given you an informed consent form, no? You have a right to have a copy of that form. On that form, it should list the contact information for the person in charge of the study. It should include the doctor who spoke with you about the study, if not on the form then I think he should have provided you with his or her information. Do you have it? Anyway, so that would be what I would do. The system does suck, but it gets a bit better once people know you and you better know how to navigate the system. It will always be a bit tough, though, unfortunately, and I'm very sorry that you had to go through that experience. You're dealing with so much at one time and it's hard to take it all in and know what to do when you're in a financially precarious situation. *gives you hugs* You were brave, and are brave. We literally can barely afford to feed ourselves after paying for my meds, my mum is having to come up to give us money just so we can survive, and my mum is as piss poor as we are.
So when I say I CAN'T afford to schedule my appointment right now, I seriously mean CAN'T.
And I know it's in my records that I'm supposed to enroll, because they gave me a hard copy of some of the papers upon my discharge, and the guy I talked to was one of the specialists at the hospital at which I was admitted, and I'm certain he pulled my file up because I had to give him my whole personal info spiel.
I can't enroll in the study until I do this four week follow-up, and apparently I can't schedule a four week follow-up without practically selling an organ on the black market.
I mean, good news, I've got a few weeks still to try to get this s**t together, but it's still frustrating.
The hospital I went to was actually really good, they're working with me and everything, and all the medical professionals that visited me seemed honestly invested in me and my health and were very nice and helpful, and the doctor I spoke with yesterday DID say I should be able to go through the hospital's charity network to work out more options, but.... I really can't make these calls myself, I almost hyperventilated over the phone for the whole like two minutes I was on yesterday.
With any luck, my medicaid will come through before the end of the month (good news, the hospital is helping me apply and gave me my own case worker already, and they're certain I qualify, it's just going to take some time for them to get all the paper work through and stuff) and it'll make everything easier, but until then I feel like it's just going to be a lot of doors slamming in my face because I can't afford to pay for a key, I'm almost afraid for the return call about setting up a primary care provider after yesterday...
(Though, the hospital is helping me get set up with that, too, which is better than me trying to muddle through this myself, I wouldn't even know where to start.)
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Posted: Fri Nov 09, 2018 3:18 pm
Now that I'm on meds for my condition and not constantly sick, I can eat cheese and pasta again!
I'm so excited, you don't even know.
I missed cheese.
Unfortunately, I don't know that I can drink normal milk anymore, which makes me a bit sad.
BUT AT LEAST I HAVE CHEESE.
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Posted: Wed Nov 14, 2018 3:57 pm
Pretty much me as I try to will away my suffering with blankets and laying down.
I regret deciding to see if I could handle butter.
I totally can't, it triggered a flare in my symptoms, and I've been in pretty bad pain today from it.
I mean, lesson learned, at least, but, ugh...
Sticking to olive oil for the foreseeable future.
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Posted: Fri Nov 16, 2018 11:41 am
GOOD NEWS CAME IN THE MAIL YESTERDAYYYYY.
I have medical coverage now~
I've gotta get in touch with someone to get my hospital stay and the scripts we paid ourselves covered retroactively, but I don't have to worry so much about how I'm going to afford all my doctor visits and meds now!!
AND I CAN SCHEDULE MY FOLLOW-UP APPOINTMENT.
I'm so excited, I can't even describe it.
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Posted: Mon Nov 19, 2018 8:03 am
I went out to eat for the first time in well over a month yesterday!!
I also managed to go shopping!
Without falling on my face!
And I could lift a three pound tub of yogurt, and a bag of potatoes (albeit... barely), and I managed to carry a box of 200 trash bags (we won't need to buy trash bags for over a year now, totally worth the, like, 18 dollars we paid for this monster box at Costco)!
(These may not seem like feats, but I was practically bedridden for two weeks and lost a great deal of strength in my, well, everything while I was ill, and could hardly walk from the car to my apartment when I was first discharged, so this is a real accomplishment.)
I'm... really happy, and excited, it's so nice to have real, tangible progress in my recovery process.
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Posted: Mon Nov 19, 2018 11:50 am
Queen Spazzy
I went out to eat for the first time in well over a month yesterday!!
I also managed to go shopping!
Without falling on my face!
And I could lift a three pound tub of yogurt, and a bag of potatoes (albeit... barely), and I managed to carry a box of 200 trash bags (we won't need to buy trash bags for over a year now, totally worth the, like, 18 dollars we paid for this monster box at Costco)!
(These may not seem like feats, but I was practically bedridden for two weeks and lost a great deal of strength in my, well, everything while I was ill, and could hardly walk from the car to my apartment when I was first discharged, so this is a real accomplishment.)
I'm... really happy, and excited, it's so nice to have real, tangible progress in my recovery process. Well, not to quote Donald Trump, but I do declare: "So much winning!!" Congratulations!!! I like your GIFs.
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